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European Patients Rights Day is still needed in view of violations in Spain and other EU countries

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On April 18th the European Patients’ Rights Day is celebrated, which is the annual recurrence that celebrates patients’ and civil society organisations in their efforts to advance patients’ rights at the global and European level.

The European Patients’ Rights Day was created by the Active Citizenship Network to inform, discuss, and take commitments to improve patients’ rights in Europe and in each Member State.

European Patients’ Rights Day complements the mission of many practitioners and civil society organizations to advance the interests of patients and patients’ communities by increasing the awareness of human rights and specifically patient’s rights while strengthening their collective impact across Europe through effective advocacy, education, empowerment, exposing any all sorts of abuses, and of course, creating partnerships.

Patients rights are still not completely upheld everywhere and many european countries still have laws that violate the convention of the rights of people with dissabilities, by allowing or even authorizing through courts, involuntary medical treatments and involuntary commitments, as it is the case of a 30 years young Spanish citizen, being held in the Provincial Hospital Santiago de Compostela (Conxo), against his will and apply electroshocks against his will (as many as 9, and which in this context could be considered torture by the WHO and the UN) and without the consent of the family.

There are quite some groups around Europe that fight for the rights of the patients and here you can find a few of them who putsa spotlight on patients’ voices.

European Patients’ Forum

The European Patients’ Forum is the leading voice of patient organisations in Europe. What defines and drives our vision?

We lead patient advocacy in Europe providing a cross-disease perspective from a wide patient community to the policy-making process on issues which have a direct impact on patients’ lives.

ELPA

ELPA strongly believes that patients’ rights will be improved in Europe and beyond, transforming patients’ traditional role from mere targets and users of health services to active citizens participating in the healthcare crafting. Patients should be more involved in assessing and evaluating health care systems, participating in policy-making processes, designing clinical trials, drafting medical information.

Global Heart Hub

“In the case of diagnosed severe aortic stenosis, delayed treatment can be life threatening – so patients have a right to be treated on time with the best available treatments. In 2021, the Global Heart Hub commits to raising awareness of these rights”

Neil Johnson Director of Development, Global Heart Hub

EATG

Criminalisation of key populations groups affected by HIV/AIDS and co-infections is a key obstacle to an effective response. In 2021, EATG is committed to scale up advocacy for these key populations whose rights are overridden, particularly in Central Europe and the EECA region (Eastern Europe and Central Asia).

CCHR

This is a human rights watchdog organization on the field of mental health, exposing abuses in the fields of psychiatry, and advocating for the eradication of laws that permit psychiatric abuses. The first organization of its kind was founded in 1969 in the United States, and they now have over 200 sister organizations in 34 countries. The European chapters often contribute to consultations at the UN and the Committee on the Rights of the Child. They also recently achieved a major victory for patients’ rights on a case in which the Spanish Society of Psychiatry did not want CCHR to document, expose or criticise the abuses committed in the field.

Dmd Aileleri Dernegi

Disabled patients needs to be provided not only equal but also fair rights!

“I felt myself disabled when I could not enter school with my wheelchair because of ineligible enterance, not when I lose my ambulation”

“I felt myself disabled when I could not use public transportation with my wheelchair because of ineligible vehicles, not when I lose my ambulation”

“I felt myself disabled when my wheelchair was broken, not when I lose my ambulation”

EUROPA DONNA

All European Patients have the right to equal access to treatment and diagnosis no matter where they live. This is one of the 10 key overarching rights of the European Code of Cancer Practice which aims to inform and assist patients at all stages of their cancer journey. EUROPA DONNA- The European Breast Cancer Coalition supports the Code and commits to continue advocating for patients’ rights as we have done for more than 25 years.

WFIPP

WFIPP has a project called World Continence Week taking place 21st to 27th June. The aim is to help raise awareness of incontinence and other pelvic floor disorders. In doing so, we hope to engage patients via our newly launched Digital Platform Support in Continence, a web/based tool as a blueprint for patients and their families and healthcare professionals alike. This will help improve patients’rights in Europe and beyond.

ARAM

ARAM is already very active at the European level on behalf of its members. It joins other European organisations to ensure that common issues experienced by patients in other European countries as well, will be addressed at the European level to ensure that patients’ rights are respected everywhere. Fairer and healthier for everyone or none at all!

Malta Health Network

They continue to advocate for the rights of family caregivers of severely mentally ill persons to be recognised by the mental health care system as partners in care and for mentally ill persons with disabling conditions to access the same rights to welfare benefits as persons with a disability. They continue to enable survivors of domestic violence to access peer mentoring support so that they too accompany other survivors in their journey towards resiliency, healing and a better future.

EURORDIS

In 2021, EURORDIS-Rare Diseases Europe commits to assisting European Union institutions to develop a new EU Action Plan for Rare Diseases, which will lead to improved policy and a better future for the 30 million people living with a rare disease in Europe. They continue to advocate for the adoption of a UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease to protect and promote the rights of persons with rare diseases worldwide.

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Health & Society

EU treading Dangerous Waters: The Perils of Psychedelics in Therapeutic Use

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The European Commission is getting ready to review citizens’ proposals and one controversial idea on the table is the ‘PsychedeliCare’ initiative that supports the exploration and implementation of psychedelic treatments for mental wellbeing issues. Advocates of this initiative highlight the advantages of using psychedelics in addressing mental health concerns; however it’s crucial to carefully assess the consequences of making these substances mainstream for therapeutic use, it already happened with way too many “pharma products” and end up being dangerous street drugs, as this is what they actually were from the beginning.

The Illusory Promise of Psychedelics

Supporters of this “therapies” frequently promote these substances as amazing remedies for profound mental health challenges like depression and anxiety disorders such as PTSD are regularly highlighted by them in support of their claims. However, these early research findings are willfully misinterpreted and exaggerated. The “positive outcomes” observed in limited research studies do not automatically translate to safety and effectiveness across wider and more varied demographic groups, often the contrary. Throughout history the fascination with a quick fix for mental health issues has often resulted in disappointment and harm, if not death.

A Lack of Comprehensive Understanding

The insufficient scientific knowledge about psychedelics raises concerns within the community as the intricate workings of the human brain remain a mystery when influenced by these substances. There are risks such as psychological distress and worsening of preexisting mental health conditions that make it unthinkable to integrate psychedelics into mainstream therapy practices at all. It is crucial to acknowledge the variations in individual experiences and biological compositions to prevent unintended harm rather than aiding in treatment efforts.

Regulatory and Ethical Concerns

The push for government endorsement of psychedelic therapies raises numerous ethical questions. Should substances with known psychoactive properties be part of mainstream health care? The regulatory environment surrounding these compounds is fraught with challenges, including ensuring quality control, standardizing dosages, and preventing misuse. With the legalization movements in various regions, the potential for recreational abuse expands, risking public health and safety.

Historical Context and Social Implications

Looking back, the late 1960s and early 1970s were marked by a psychedelic counterculture that resulted in societal turmoil and increased drug abuse. The legacy of this era still looms large; many young individuals romanticize psychedelic use without regarding the severe consequences that accompanied its earlier popularity, including addiction, mental health crises, and a societal disregard for safety protocols.

A Dangerous Precedent

By calling for a more prominent role for psychedelics in treatment protocols, the advocates of the ‘PsychedeliCare’ initiative may unintentionally set a dangerous precedent. Replacing established, evidence-based treatments with unproven psychedelic therapies could detract from the very real progress made in mental health care. It could shift focus away from holistic approaches that consider lifestyle, therapeutic counseling, and medication tailored to individual needs.

Conclusion

The debate surrounding the ‘PsychedeliCare’ initiative should prompt a vigilant and cautious examination of the implications of endorsing psychedelics as treatment options. While there is a critical need for innovative approaches in mental health care, rushing to embrace unproven therapies poses significant risks. It is paramount that we prioritize rigorous scientific scrutiny, ethical considerations, and the well-being of individuals over the allure of quick solutions. The only clear path forward is one grounded in proven therapies, comprehensive research, and unwavering commitment to public health.

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Why chocolate should not be given to dogs

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Chocolate is a favorite delicacy for people, but for cats and dogs it is a real poison, writes the magazine ” Sciences et Avenir” and explains why pets should not be “pampered” with chocolate under any circumstances.

For them, chocolate is toxic, because it is not properly absorbed by their body. This is due to the alkaloid theobromine, which is contained in cocoa and therefore in chocolate.

The substance becomes dangerous to health when large amounts of it are stored in the liver. About 12 grams of theobromine are contained in dark chocolate, twice as much in milk chocolate, and very small amounts in white chocolate.

Theobromine does not harm humans, as the human body manages to break it down quickly.

However, it takes 20 hours for dogs to get rid of this molecule. It can build up in their liver and cause poisoning if large amounts of chocolate are ingested at once.

Among the symptoms are vomiting, diarrhea, rapid pulse, convulsions.

The same is true for cats. However, they are less attracted to chocolate than dogs because they cannot taste sweets with their tongues, although there are exceptions.

In addition, pet obesity is the subject of a number of educational campaigns aimed at owners.

A court in North West England has banned a British man from keeping pets for the next 10 years because his Dalmatian became too fat. wrote the English tabloid “Sun” in November 2009.

40-year-old man John Green, a resident of Macclesfield in Cheshire, showed extreme irresponsibility towards his dog Barney and fed him chips and chocolate.

Thus, in just three months, it became several times fatter than normal for its breed and reached 70 kg.

Green was tipped off by alarmed, vigilant fellow citizens.

Animal control officials warned Green that his dog’s health was in danger and recommended that he be put on a diet.

However, he did not follow the recommendations and the dog continued to gain weight.

The Dalmatian was eventually removed from his owner’s home in June and put on a diet in a private kennel, where staff made sure he got enough exercise.

As a result, Barney, who is eight years old, lost 40 kg.

Green pleaded guilty to causing his dog unnecessary suffering, but the court found some mitigating circumstances because the man treated Barney more like a friend than a dog and did not realize he was harming him.

That’s why Green was only sentenced to 200 hours of community service and to pay £780 in costs.

Illustrative Photo by Glenn: https://www.pexels.com/photo/high-angle-photo-of-a-corgi-looking-upwards-2664417/

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Russian Orthodox Church calls on mass culture to abandon ‘images promoting alcoholism’

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On the occasion of the Day of Sobriety celebrated in the country today, the Russian Orthodox Church called on mass culture not to promote alcoholism, TASS reported.

The agency recalls that the All-Russian Day of Sobriety is celebrated on the initiative of the Russian Orthodox Church on September 11 to remind people of the harm caused by alcohol. On this day, in some parts of Russia, the sale of alcohol is limited or completely prohibited.

“The culture of attitude towards this is very important. There are many “nice jokes” about alcoholism in our everyday culture. There is nothing good about that. We know what the state of intoxication leads to. Those who deal with mass culture should make an effort that the image of the “dear drunkard” should still leave our mass culture,” said the head of the synodal department of the Moscow Patriarchate for Church Interaction on the sidelines of the St. Petersburg Forum of United Cultures with society and media Vladimir Legoida.

Asked whether it would be appropriate to ban or restrict the sale of alcohol across the country, he said “that would be wonderful”. “But it is important that people do this consciously, independently, not because someone is forcing them, and also that there is, as it is customary to say, a public consensus,” he stated.

Legoida noted that the category of “sobriety” is important for the church in general, which refers not only to abstinence from alcohol.

Meanwhile, during a press conference dedicated to the All-Russian Day of Sobriety, Russia’s Deputy Health Minister Oleg Salagai said that alcohol abuse can reduce a man’s life expectancy by six years and a woman by five years.

“The systemic measures that were adopted allowed us to really reduce alcohol consumption. Today, it can be confidently said that Russia is not one of the most drinking countries in the world,” said the deputy minister, who pointed out that in 2023 alcohol consumption in the country was about 8.4 liters per person, while at the beginning of the century the indicator was in double digits.

Illustrative Photo by EVG Kowalievska: https://www.pexels.com/photo/selective-focus-photography-of-assorted-brand-liquor-bottles-1128259/

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