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Despite the violations in Spain and other EU member countries, European Patients Rights Day still needs to be observed

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The European Patients’ Rights Day, celebrated on April 18th, is an annual event that honors the efforts of patients and civil society organizations to advance the rights of patients at the global and European levels.

Active Citizenship Network created the European Patients’ Rights Day to inform, discuss and take commitments for improving patients’ rights in Europe.

The European Patients’ Rights Day is a day that complements the mission of many practitioners, civil society organizations, and patient advocacy groups to advance the interests and communities of patients by increasing awareness of human rights, and more specifically, patient’s rights, while strengthening their collective impact throughout Europe through effective advocacy and education, empowerment, exposing all kinds of abuses and, of course, creating partnership.

Many european countries still do not fully respect the rights of patients and have laws that violate conventions of rights of people with disabilities, allowing or even approving through courts involuntary medical treatment and involuntary obligations, as is the case for A 30 year old Spanish citizen is being held at the Provincial Hospital Santiago de Compostela, (Conxo), in spite of his will. The family was not consulted and the victim received electroshocks (up to nine, which could be considered torture in this context by the WHO and UN).

There are many groups in Europe that fight for patient rights. Here you can find some of them who put the spotlight on the voices of patients.

European Patients’ Forum

The European Patients’ Forum is a leading voice for patient organisations in Europe. What is the vision that drives us?

We lead Patient advocacy in Europe provides a cross-disease viewpoint from a large patient community to the decision-making process regarding issues that have a direct effect on patients’ lives.

ELPA

ELPA is convinced that patients’ rights in Europe and beyond will be improved, transforming the traditional role of patients from mere users and targets of health services into active citizens who participate in healthcare crafting. Patients should be involved in assessing health care systems, taking part in policy-making, designing clinical trials and drafting medical information.

Global Heart Hub

“In the case diagnosed severe aortic obstruction, delayed treatment can be fatal – patients have a rights to be treated as soon as possible with the best treatments available.” The Global Heart Hub will raise awareness of these rights in 2021.

Neil Johnson Director of development, Global Heart Hub

EATG

The criminalisation of key populations affected by HIV/AIDS or co-infections is a major obstacle to an effective response. In 2021, EATG will increase advocacy for key populations whose human rights are violated, especially in Central Europe and EECA (Eastern Europe Central Asia).

CCHR

This is a human-rights watchdog organization in the field of mental healthcare. It exposes abuses within the fields of psychiatry and advocates for the eradication laws that allow psychiatric abusive practices. The first organization in this field was founded in the United States in 1969. They now have more than 200 sister organizations in over 34 countries. The European chapters are often involved in consultations at the UN or the Committee on the Rights of the Child. Recently, they also achieved a major milestone. Victory for Patients’ Rights On a case where the Spanish Society of Psychiatry refused to allow CCHR document, expose or critique the abuses committed on the field.

Dmd Aileleri Dernegi

Disability patients need to be given fair and equal rights!

“I was disabled when I couldn’t enter school in my wheelchair due to ineligible entryance, not when my ambulation stopped”

“I feel disabled when I can’t use public transportation in my wheelchair due to ineligible vehicles. Not when I lose my ability to walk”

“I felt disabled when my wheelchair broke, not when I lost my ambulation.”

EUROPA DONNA

All European Patients have a right to equal treatment and diagnosis, regardless of where they live. This is one of 10 key rights of the European Code of Cancer Practice, which aims at educating and assisting patients throughout their cancer journey. EUROPA DONNA – The European Breast Cancer Coalition is in support of the Code and will continue to advocate for patient rights, as we have for over 25 years.

WFIPP

WFIPP is launching a project called World Continence Week from 21st-27th June. The goal is to raise awareness about incontinence, and other pelvic disorders. We hope to engage patients through our newly launched Digital Platform Support for Continence. This web/based tool is a blueprint both for patients, their families, and healthcare professionals. This will improve the rights of patients in Europe and beyond.

ARAM

ARAM is very active on behalf of its member organisations at the European level. It joins with other European organisations in order to ensure that issues that are common to patients in other European countries will be addressed on a European level. This will ensure that patient rights are respected throughout Europe. Fairer and healthier or none at all?

Malta Health Network

They continue to advocate that family caregivers of severely ill mentally ill people be recognized by the mental healthcare system as partners in their care, and that mentally ill people with disabling conditions have the same rights to benefits as those with disabilities. They continue to provide peer mentoring support to survivors of domestic abuse so that they can join other survivors on their journey to resiliency and healing.

EURORDIS

In 2021, EURORDIS – Rare Diseases Europe will assist European Union institutions in developing a new EU Action Plan for Rare Diseases. This will lead to better policy and a brighter future for the 30,000,000 people who live with a rare illness in Europe. They continue to advocate the adoption of the UN Resolution on Addressing Challenges of Persons with a Rare Disease in order to protect and promote rights of people with rare diseases around the world.

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EU treading Dangerous Waters: The Perils of Psychedelics in Therapeutic Use

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The European Commission is getting ready to review citizens’ proposals and one controversial idea on the table is the ‘PsychedeliCare’ initiative that supports the exploration and implementation of psychedelic treatments for mental wellbeing issues. Advocates of this initiative highlight the advantages of using psychedelics in addressing mental health concerns; however it’s crucial to carefully assess the consequences of making these substances mainstream for therapeutic use, it already happened with way too many “pharma products” and end up being dangerous street drugs, as this is what they actually were from the beginning.

The Illusory Promise of Psychedelics

Supporters of this “therapies” frequently promote these substances as amazing remedies for profound mental health challenges like depression and anxiety disorders such as PTSD are regularly highlighted by them in support of their claims. However, these early research findings are willfully misinterpreted and exaggerated. The “positive outcomes” observed in limited research studies do not automatically translate to safety and effectiveness across wider and more varied demographic groups, often the contrary. Throughout history the fascination with a quick fix for mental health issues has often resulted in disappointment and harm, if not death.

A Lack of Comprehensive Understanding

The insufficient scientific knowledge about psychedelics raises concerns within the community as the intricate workings of the human brain remain a mystery when influenced by these substances. There are risks such as psychological distress and worsening of preexisting mental health conditions that make it unthinkable to integrate psychedelics into mainstream therapy practices at all. It is crucial to acknowledge the variations in individual experiences and biological compositions to prevent unintended harm rather than aiding in treatment efforts.

Regulatory and Ethical Concerns

The push for government endorsement of psychedelic therapies raises numerous ethical questions. Should substances with known psychoactive properties be part of mainstream health care? The regulatory environment surrounding these compounds is fraught with challenges, including ensuring quality control, standardizing dosages, and preventing misuse. With the legalization movements in various regions, the potential for recreational abuse expands, risking public health and safety.

Historical Context and Social Implications

Looking back, the late 1960s and early 1970s were marked by a psychedelic counterculture that resulted in societal turmoil and increased drug abuse. The legacy of this era still looms large; many young individuals romanticize psychedelic use without regarding the severe consequences that accompanied its earlier popularity, including addiction, mental health crises, and a societal disregard for safety protocols.

A Dangerous Precedent

By calling for a more prominent role for psychedelics in treatment protocols, the advocates of the ‘PsychedeliCare’ initiative may unintentionally set a dangerous precedent. Replacing established, evidence-based treatments with unproven psychedelic therapies could detract from the very real progress made in mental health care. It could shift focus away from holistic approaches that consider lifestyle, therapeutic counseling, and medication tailored to individual needs.

Conclusion

The debate surrounding the ‘PsychedeliCare’ initiative should prompt a vigilant and cautious examination of the implications of endorsing psychedelics as treatment options. While there is a critical need for innovative approaches in mental health care, rushing to embrace unproven therapies poses significant risks. It is paramount that we prioritize rigorous scientific scrutiny, ethical considerations, and the well-being of individuals over the allure of quick solutions. The only clear path forward is one grounded in proven therapies, comprehensive research, and unwavering commitment to public health.

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Why chocolate should not be given to dogs

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Chocolate is a favorite delicacy for people, but for cats and dogs it is a real poison, writes the magazine ” Sciences et Avenir” and explains why pets should not be “pampered” with chocolate under any circumstances.

For them, chocolate is toxic, because it is not properly absorbed by their body. This is due to the alkaloid theobromine, which is contained in cocoa and therefore in chocolate.

The substance becomes dangerous to health when large amounts of it are stored in the liver. About 12 grams of theobromine are contained in dark chocolate, twice as much in milk chocolate, and very small amounts in white chocolate.

Theobromine does not harm humans, as the human body manages to break it down quickly.

However, it takes 20 hours for dogs to get rid of this molecule. It can build up in their liver and cause poisoning if large amounts of chocolate are ingested at once.

Among the symptoms are vomiting, diarrhea, rapid pulse, convulsions.

The same is true for cats. However, they are less attracted to chocolate than dogs because they cannot taste sweets with their tongues, although there are exceptions.

In addition, pet obesity is the subject of a number of educational campaigns aimed at owners.

A court in North West England has banned a British man from keeping pets for the next 10 years because his Dalmatian became too fat. wrote the English tabloid “Sun” in November 2009.

40-year-old man John Green, a resident of Macclesfield in Cheshire, showed extreme irresponsibility towards his dog Barney and fed him chips and chocolate.

Thus, in just three months, it became several times fatter than normal for its breed and reached 70 kg.

Green was tipped off by alarmed, vigilant fellow citizens.

Animal control officials warned Green that his dog’s health was in danger and recommended that he be put on a diet.

However, he did not follow the recommendations and the dog continued to gain weight.

The Dalmatian was eventually removed from his owner’s home in June and put on a diet in a private kennel, where staff made sure he got enough exercise.

As a result, Barney, who is eight years old, lost 40 kg.

Green pleaded guilty to causing his dog unnecessary suffering, but the court found some mitigating circumstances because the man treated Barney more like a friend than a dog and did not realize he was harming him.

That’s why Green was only sentenced to 200 hours of community service and to pay £780 in costs.

Illustrative Photo by Glenn: https://www.pexels.com/photo/high-angle-photo-of-a-corgi-looking-upwards-2664417/

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Russian Orthodox Church calls on mass culture to abandon ‘images promoting alcoholism’

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On the occasion of the Day of Sobriety celebrated in the country today, the Russian Orthodox Church called on mass culture not to promote alcoholism, TASS reported.

The agency recalls that the All-Russian Day of Sobriety is celebrated on the initiative of the Russian Orthodox Church on September 11 to remind people of the harm caused by alcohol. On this day, in some parts of Russia, the sale of alcohol is limited or completely prohibited.

“The culture of attitude towards this is very important. There are many “nice jokes” about alcoholism in our everyday culture. There is nothing good about that. We know what the state of intoxication leads to. Those who deal with mass culture should make an effort that the image of the “dear drunkard” should still leave our mass culture,” said the head of the synodal department of the Moscow Patriarchate for Church Interaction on the sidelines of the St. Petersburg Forum of United Cultures with society and media Vladimir Legoida.

Asked whether it would be appropriate to ban or restrict the sale of alcohol across the country, he said “that would be wonderful”. “But it is important that people do this consciously, independently, not because someone is forcing them, and also that there is, as it is customary to say, a public consensus,” he stated.

Legoida noted that the category of “sobriety” is important for the church in general, which refers not only to abstinence from alcohol.

Meanwhile, during a press conference dedicated to the All-Russian Day of Sobriety, Russia’s Deputy Health Minister Oleg Salagai said that alcohol abuse can reduce a man’s life expectancy by six years and a woman by five years.

“The systemic measures that were adopted allowed us to really reduce alcohol consumption. Today, it can be confidently said that Russia is not one of the most drinking countries in the world,” said the deputy minister, who pointed out that in 2023 alcohol consumption in the country was about 8.4 liters per person, while at the beginning of the century the indicator was in double digits.

Illustrative Photo by EVG Kowalievska: https://www.pexels.com/photo/selective-focus-photography-of-assorted-brand-liquor-bottles-1128259/

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